Optimizing All Aspects of Management to Improve Outcomes in Patients With Cystic Fibrosis

Program Dates: September 15, 2017 to September 14, 2018
Credits: .50 AMA PRA Category 1 Credit(s)™ Per Module

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Optimizing All Aspects of Management to Improve Outcomes in Patients With Cystic Fibrosis

Program Overview

This activity includes eight 30-minute modules that bring learners up to date on all aspects of cystic fibrosis (CF) treatment and management. Dr. John P. Clancy interviews eight experts in the CF field, each with their own specialization. The individual modules will focus on different areas of CF care, ranging from newborn screening to long-term real world efficacy and safety data. Each module is worth 0.5 CME/CNE credits.

Target Audience

These activities are designed for physicians, nurses, and other healthcare professionals involved in the management of patients with cystic fibrosis.

Educational Objectives

  1. Discuss the importance of newborn screening, accurate diagnosis, genomic evaluation, and early pharmacologic intervention.
  2. Review the current relevant and emerging clinical trial data.
  3. Develop optimal strategies for the CFTR modulated treated patient accurate life-long assessment, monitoring, and management.


I. Managing the Under 6-Year-Old Patients, Including Newborn Screening

II. Review of Available Pulmonary Therapeutic Options for Cystic Fibrosis Patients

III. Advances in CFTR Therapeutics for Pediatric Patient with Cystic Fibrosis

IV. Cystic Fibrosis: Nutrition and Growth

V. The Importance of the Inter-Professional Team and Shared-Decision Making

VI. Genotypes and Phenotypes and Predicting Disease Severity in Patients with CF

VII. Efficacy and Safety Data for Combination CFTR-Based Therapies

VIII. Longer-Term Real World Efficacy and Safety Data for CFTR Modulators


Clancy HeadshotJohn P. Clancy, MD (Chair)
Professor of Pediatrics
Director, Pulmonary Medicine Research
Co-Director, CF Research Development Program
Medical Director, Office of Clinical and Translational Research
Gunnar Esiason/Cincinnati Bell Chair in Life Sciences Research
Division of Pulmonary Medicine
Cincinnati Children’s Hospital Medical Center
Cincinnati, Ohio


Debbie BenitezDebbie S. Benitez, RN, MSN, ACNP-BC
Pulmonary Nurse Practitioner/Nurse Coordinator
Center for Cystic Fibrosis
Keck Medical Center of USC
Los Angeles, California



Screen Shot 2017-09-26 at 11.06.21 AMManu Jain MD, MSc
Professor of Medicine and Pediatrics
Director of Adult CF
Northwestern University Feinberg School of Medicine
Chicago, Illinois



McColley Head ShotSusanna A. McColley, MD
Stanley Manne Children’s Research Institute
Ann & Robert H. Lurie Children’s Hospital of Chicago
Professor of Pediatrics
Northwestern University Feinberg School of Medicine
Chicago, Illinois


Screen Shot 2017-09-26 at 11.08.30 AMCarlos Milla, MD
Professor and Director
The Stanford Cystic Fibrosis Center
Associate Director for Translational Research
Center for Excellence in Pulmonary Biology
Stanford University
Palo Alto, California


RatjenFelix Ratjen, MD, PhD
Sellers Chair in Cystic Fibrosis
Head, Division of Respiratory Medicine
Senior Scientist, Translational Medicine
The Hospital for Sick Children
University of Toronto
Toronto, Canada


Savant HeadshotAdrienne P. Savant, MD, MS
Cystic Fibrosis Center Director
Ann & Robert H. Lurie Children’s Hospital of Chicago
Associate Professor Pediatrics
Feinberg School of Medicine Northwestern University
Chicago, Illinois



Sawicki HeadshotGregory Sawicki, MD, MPH
Director, Cystic Fibrosis Center
Boston Children’s Hospital
Assistant Professor of Pediatrics
Harvard Medical School
Boston, Massachusetts



Taylor-Cousar HeadshotJennifer L. Taylor-Cousar, MD, MSCS
Associate Professor of Medicine and Pediatrics
Divisions of Pulmonary, Critical Care and Sleep Medicine and Pediatric Pulmonary Medicine
Co-Director and CF TDN Director, Adult CF Program
National Jewish Health
Denver, Colorado



Financial Support

This activity has been supported by an independent educational grant from Vertex Pharmaceuticals Incorporated.

Provided in collaboration with the Elsevier Office of Continuing Medical Education, Elsevier and AcademicCME.

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